The next presenter at the 2019 AoIR Flashpoint Symposium is Ylva Hård af Segerstad, who begins by pointing out how much harder the study of social media phenomena has become as platform APIs have been curtailed and closed down. Additionally, and relatedly, new policy settings such as the European GDPR, have also imposed new limits on data collection, processing, and sharing. This creates critical new ethical challenges for research.
Ylva’s own work focusses on online communities supporting bereaved parents; such communities are especially important in societies such as Sweden, where cultural values mean that death and other ‘difficult’ topics are …